Raphi Strauss is Israel’s first diagnosed case of Xeroderma Pigmentosum (XP,) an extremely rare and incurable skin disorder. Those afflicted with XP lack the natural immunity that normal skin pigmentation creates, and as a result cannot repair the skin damage caused by exposure to UV light. For those with XP, even minimal exposure to UV leads to severe sunburn, blistering, and permanent skin cell death. These damaged cells often become cancerous, leading to severe bouts of melanoma.
The only way a person with XP can prevent such symptoms is by avoiding UV light altogether. By using the Solarmeter Model 5.7 Sensitive Total UV Meter, XP patients all over the world test light conditions, in order to monitor UV transmission outdoors, indoors, and through windows. Mr. Strauss recently called us to tell us his story, including ensuring over 300 surgeries and over 60,000 biopsies. Using the Model 5.7 has helped him stay safer than otherwise possible, improving the quality of his life.
We at Solarmeter are proud to produce products which help XP support groups worldwide, from the XP Family Support Group in California to the XP Society Of Israel, and several other related organizations which monitor UV exposure for patients living with xeroderma pigmentosum.
To learn more about any of our devices, please browse our site, give us a call at 215-517-8700, or send us an email at email@example.com.
Raphi Strauss, Founder of The XP Society of Israel